I’ve been trying to adjust to having a diagnosis.

I’ve been reading up on fibromyalgia and I don’t know why I (or the doctors) never really considered it before. It really fits my symptoms.

It’s been almost two years since I was in the hospital. No one ever checked me for tender points until the rheumatologist (and boy, were they tender!). I started off thinking that I had IST/POTS/some form of autonomic nervous system disfunction. And it turns out I was right, although FM is the cause of it. Hopefully I don’t also have Cushing’s, as they’re no longer testing me for it.

Life is hard lately. The pain, the tiredness, the depression, the inability to think. Work is hard. I wish so much that we had short-term disability. I feel like a month or two off work would help me so much.

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