My Health

I went back to the doctor’s today. I’ve had enough of feeling like hell. And looking like hell too, I might add. Over the past year, my hips, thighs, and calves have become covered with violent, angry, red “stretch marks” (they are not stretch marks in the traditional sense). Last night I was reading through the dysautonomia forum, as I do everyday, when I came upon a post that a rash that looks like stretch marks can be caused by Bartonella, which can occur as a co-infection in Lyme disease.

I was tested for Lyme last year and was negative, but I learned there’s many false negative tests and sometimes doesn’t show up as positive for several years. PA is one of the top-risk Lyme states and I’ve had several tick bites in my life. But in any case, I want to know what the heck is wrong with me.

So I went today. He was quite concerned over how high my blood pressure was (it seems to just keep getting higher and higher this past year and doesn’t respond to meds) and about how my legs looked. He ordered some blood tests and said that if they show up negative, then we’ll have to do some more tests. One of the things he said was possible was Cushing’s Syndrome. I had actually just read about that a few days ago and thought my symptoms fit it, but as is my usual state of mind lately, I promptly forgot all about it.

I’m just so pissed off/frustrated/depressed/scared about this whole thing. It’s been a year and a half since my hospital stay last year and my health has been getting worse instead of better. Is a diagnosis too much to ask for? Especially if it’s something that is curable. I don’t want to waste anymore of my feeling miserable due to doctors not giving a damn about what actually is wrong with me.

As for the Postural Orthostatic Tachycardia Syndrome/Dysautonomia stuff, it can often occur as a secondary illness, especially with Lyme or anything that messes with your nervous system.

And so the waiting game begins again.

  • I hope they find out what’s been going on; I can’t believe they don’t have a diagnosis for you yet!

  • I really hope they can figure out what’s wrong too. I hate that so much of medicine is waiting around for test results and guesswork. I’m sending good, healthy thoughts your way… I love you so much. (I will be emailing you back soon! I am taking a break from everything tonight and just sewing.)

  • Oh wow that really sucks. I hope they can figure out what is wrong =(. *hugs*

  • I’m so sorry this is happening to you. I have a friend with Lyme Disease, and it took going to an infectious medicine specialist to get diagnosed.

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